Bastard f.cking cancer

[ynot slow]

Sorry guys,was rung at work about 4.30ish by my wife,asking to phone a lady about my cancer tumour operation.Gist of it was if I 'd give consent so my files could be used for research.No probs I said,then she said,many thanks as your daughter needs surgery.WTF I ASKED,after my cancer was diagnosed,Iwas asked to undergo genetic screening,as I was to young for my condition(40),and they were interseted in seeing why I contracted it,also if my kids carried the gene.

Long process but they found the gene,then blood tests for my girls,1 has and 1 hasn't got the gene.The one which needed screening (colonoscopy annually) was pissed off as normal,plus she lost a friend to cancer.

We were of the opinion that screening was all required and any polyps found would be lasered at same time,was happily unaware till today,
that to prevent her from getting cancer of bowel, she needs most of large bowel removed.

Only good thing(joke) is she doesn't need to have a partial or full illeostomy thus no need for colostomy bag for ever,(something definite if she doesn't have operation),which I am gratefull for.

Fuck it's so hard after beating this disease to find your kids have a small chance of having your gene,which I'd gladly keep.They get your gene for scholastic ability which is great,she is going to uni next year.

Asked when the operation is happening and was told usually between 16-19yrs old,and to minimise disruption at school,so I said uni next year is her aim,that being the case I was told she could be operated around early next year so she can be fit for uni.

She is bloody great,bought her own car with money earnt doing paper runs, jobs in supermarket after school,so fucken much to take in for her.I don't understand this disease at all.The lady I spoke to said she knew a couple of teenagers that could talk to us which I hope to do,they went through same operation.

Please, I don't want you to feel sorry for me or us,at least we know she won't get cancer which is damn good,and when I was recovering and having treatment I saw many worse than myself,and took the stance that there was always someone worse off than me,and it was true.

To any people out there with problems I sympathise with you,the only farken genes I'm interested in now are my levis.Apologies for rambling on,feeling better now,until I catch up with her tommorrow,she lives with her mum.

Cheers for now,Tony.:angry:

[MyGSXF]

Hell Tony.. :shit: that sux, fella!!! :mellow:

Sending big :hug: to you & your daughter :yes:

Good on you for opening your files for research too :niceone: the sooner they find some kind of bloody prevention from this sort of shit happening, the bloody better!!!! :angry:

Make sure you get out for a good :scooter: in the sunshine in the weekend!!!! :done:

Jen :rockon:

[NotaGoth]

Was this about gene testing...??????? No one has ever made us aware of this...??? Is it recommended..??? *a bit confused here*

Sorry just a bit freaked due to our own situation here.. Yet nothing of the sorts been mentioned..

[ynot slow]

Was this about gene testing...??????? No one has ever made us aware of this...??? Is it recommended..??? *a bit confused here*

Sorry just a bit freaked due to our own situation here.. Yet nothing of the sorts been mentioned..

Basically because of my age the genetics team asked if they could do tests,(blood) and see if a gene was present in me which caused it to mutate,they also asked about any family history of cancer.My mum had a couple of uncles with bowell cancer but they were elderly (65+),so tried to find out why,what etc.My thoughts were if it helps anyone it's fine by me.Generally the criterior is type of cancer,age of person,family history.Similar say to women with breast cancer,if a mum has it her girls will be asked if they want to be screened even if they are under screening age.Not everyone will be asked to undergo genetic testing,just if they find you shouldn't have it whilst young or maybe couple of family have had similar illness'.

Thanks for your thoughts,agree it is confusing to take in at times.

Damn right for ride tommorrow,hopefully fine too: Oh well off to bed and try to sleep,go the Naki for shield tommorrow,lookout Nth Harbour,somethings pall into insignificance in the bigger aspect of life.:yes:

[Paul in NZ]

Ah - jeeze... Let me know if I can help - do - be useful - anything.... I guess diabetes aint so bad huh?

[NotaGoth]

Basically because of my age the genetics team asked if they could do tests,(blood) and see if a gene was present in me which caused it to mutate,they also asked about any family history of cancer.My mum had a couple of uncles with bowell cancer but they were elderly (65+),so tried to find out why,what etc.My thoughts were if it helps anyone it's fine by me.Generally the criterior is type of cancer,age of person,family history.Similar say to women with breast cancer,if a mum has it her girls will be asked if they want to be screened even if they are under screening age.Not everyone will be asked to undergo genetic testing,just if they find you shouldn't have it whilst young or maybe couple of family have had similar illness'.

Thanks for your thoughts,agree it is confusing to take in at times.

Damn right for ride tommorrow,hopefully fine too: Oh well off to bed and try to sleep,go the Naki for shield tommorrow,lookout Nth Harbour,somethings pall into insignificance in the bigger aspect of life.:yes:

So that explains why they ask if there has been cervical cancer in your family... So they can start testing earlier because you are at higher risk??

Very much so...

Hope things work out for your daughter.. Thoughts are with you and your whole family..

[Zukin]

Hi there

All the best for whatever comes along
Thinking of you, and your family

Regards
Scott & Carissa

[Nasty]

Thinking of you and your family ... its really hard when dealing with this shit I know. Kia kaha.

Nasty and Grub

[ynot slow]

Not much into the maori side of quotations,but the one for me is kia kaha,or in my version,bloody pigheadedness and determination,thankfull that I had those attributes passed down to me from my parents andthey are instilled into my girl,cheers to all today and ride safe,tony.

[pete376403]

I think I know how you feel. I have something similar, but not as serious as your case - a genetic disposition to deafness - in my case it has done the job and I no longer have any natural hearing (thanks to an Aussie scientist for developing Cochlear implants) - anyway the bad gene is transferred to female offspring only and one of my daughters has hearing problems, which may get worse as she gets older.
Words cannot describe how I felt about myself after finding this out - that a child that I'd die for, or happily kill for, is going to suffer becuase of somethng I've passed on.

[riffer]

Feel for you Tony.

My wife's side of the family has a horrid time of it with bowel cancer - ALL of her mother's generation, including her mother, got it before 55, and only her mother's still alive.

And our oldest boy has had a horrendous time of it lately with firstly, being diagnosed with coeliac disease, and problems at the other end which we thought was hirschsprungs. Only last week we found out that its not; it's something else which won't require any more surgery. He was staring down the barrel of an ostomy but hopefully we can manage it now with daily (yes daily) enemas for the next year or two until his bowel and rectum can self-repair.

And still there's the worry with cancer, especially with my wife, who's in her late 30s now. Who knows what the next ten years will bring, but prognosis is probably not too positive given the family history.

[ynot slow]

Words cannot describe how I felt about myself after finding this out - that a child that I'd die for, or happily kill for, is going to suffer becuase of somethng I've passed on.

Thats how I feel,totally gutting to know it's from yourself,think that god works in strange ways,still the fact I didn't die means she will never get it.If I'd died noboby would have found out about the genetic side,so at least some good has come out of it,also the research the specialists are doing is amazing.