I have brains - I've seen them (another hospital thread)

[Bloody Mad Woman (BMW)]

Firstly I want to thank FknAmerican for postg his thread - for his courage and inspiration as it helped me during my recent sojourn in hospital. Crikey how do people manage typing one handed. My left arm is pretty useless - I will try and correct my typos but will resort to txt words at times.

This is a factual account and not one of self pity.

I first noticed a weakness in my left arm, on tues I realised my toes and heel were num on my left leg. Went to doc he did various tests an at end asked whether I had had any headaches - I had had a real hua of a one 2 weeks b4 an was in bed 4 2 days and had some since but rationalised them away. Anyway had to go 2 a&e theere til 5 in the morning then transferred to neuro ward. Had a ct scan - they thort i had bleeding of the brain or a clot. nothing showed up then I had to have a lumbar puncture - i hate needles - so far they zr using me as a pin cushion, thank god for meditation and breathg exercises cos in the end it wasn't painful for me - wow that stuff works.
At 12 noon wed they kicked me out of my bed - gave it 2 sumone else and put me in a laziboy in the waiting room lol. at 5 they managd 2 get me in for an mri scan - interestg contraption. Then i was allowed to go home "on leave" sleep in my own bed but come back in the morng at 8am. too bloody early for my liking. By this stage I had my own orchestra of kangohammers going off in my head. Man these headaches are evil coedine doesn't even touch them.

I slept well. Drs did their rounds - I'm being treated in the waitg room again. In the neuro ward they keep asking your name, date of birth and what day, month and year is - well fk meif they don't know I'm in deep shit I said. Then one of them asked me who the prime minister was - wrong fkg question, i won't repeat my answer. I did manage to stay happy and cheerful and patient thru the whole time. Doc told me there are two things wrong somethg did show on the mri but we are consulting with the neuro surgeon and will get bak 2 u at 11. that came and went as did 11.30 so at 11.45 i said - find that dr otherwise i'm going home to bed - explosive headache again.

Dr came and I heard him ask for as private room. Only then did I think ooh shit something must really be wrong. So in I go and as if he's talking about the weather said a lump has shown up on your brain in the mri it is a brain tumour and it is near the ms part of your brain -= multiple sclerosis. We don't think you have ms - cos of the headaches and suddenness etc but you hqve an appintment at 1.30 with the neuro surgeon. Go for lunch and come back then. My first thorts were fk rAther hv a brain tumour they can cut it out - other with ms i wont be able to ride. I did pray then Please god don't take my bike away from me it's all I've got. Pitiful in hindsite lol.

So I'm sitting nxt to surgeon - she had her pc on and I said they're my brains ay - there's lots ay lol we had a good laugh - I could clearly see the tumour - size of a $2 coin so ya couldn't miss it.

Where to from here. Tomorrow I staart steriods for 5 days 1 gram each day so I'm going to be wired. They warned me they could make me very depressed. Anyway hopefully I will get feeling bak in my legs and arm after the steriods then in a month I have another mri to see if tumour has grown or not then go from there. I have no fear nor do I think the worst. I will keep positive and take one day at a time. Apart from the horrendous headaches and tiredness I'm ok. I intend living life as I normally do. Just a bit slower I guess lol.

Work are in a state of shock - I think it is worse for other people than for me - I know what I'm going thru and don't think the worse.

Tomorrow I shall be processing all the entries - for Round 1 at Taupo - be good to be busy. I'm tired now.:scooter:

[sinfull]

Good luck with that $2 coin up there girl, i hope inlation halves it and then helen takes her 50% tax on the gross !!
All joking aside I hope all goes well for ya !

[koba]

Fuck. I also hope it goes well for ya aye.

[smokeyging]

shit, thats a bugger. my cousin had the same thing last year, he's good as gold now, 10 foot tall and bulletproof again, so hopefully everything will be fine for you too. go and read the corny KB joke page, with a bit of luck the tumour will get sick of them and run to aussie....all the very best BMW.

[gijoe1313]

Crikey girl, that ain't sounding too hot! Good to read that your usual irascible self is to the fore and you're finding the positives in the situation. I think you need to give that tumor a good telling off!

Visualise it as a baddy and send some good guys in to take it out ... keep us posted :yes:

[riffer]

Not sure what I can say but hang in there and I hope it starts to look up for you soon girl - it's been a rough year or so for you it sounds. At least you know why you've not been feeling well... hopefully you'll be feeling chipper soonish. All the best.

[Dave-]

best wishes.

[terbang]

Jeeez mate, we never know what is just around the corner eh..! Get well soon OK.

[White trash]

Jeez-hus Shirey! That's a real shock. Get loody better quick luv, I need someone to give me a hard time when signing on at Round 1 or I'll feel unloved :(

Seriously though, get better soon mate.

[Mrs Busa Pete]

Good luck with that $2 coin up there girl, i hope inlation halves it and then helen takes her 50% tax on the gross !!
All joking aside I hope all goes well for ya !



This is the best post i have seen in a long time and i'm with you sinfull.

shirl you look after yourself and if there is anything i can do to help please ask. Pm sent.

[scumdog]

About the only $2 you're ever going to be able to get rid of without GST being part of it.:pinch:

Good luck and hope it all pans out for you.

[boomer]

Good luck and be strong; mines 12cm's, albeit in my chest and not my black hole


:sunny:

[Edbear]

About the only $2 you're ever going to be able to get rid of without GST being part of it.:pinch:

Good luck and hope it all pans out for you.

You're sure?, after all it's on goods AND services...;)


Good luck and be strong; mines 12cm's, albeit in my chest and not my black hole...:sunny:

It's an Alien and it's gonna bust outta there..!:yes: Keep us posted on your situation too. Hope the prognosis is all good!

Sorry to hear BMW! You know our thoughts and sympathies are with you. Mate of mine had one removed and he's doin' fine 12mths on!

All they found with mine was the left front bit missing... Obviously I don't need as much as other people...:wacko:

[yungatart]

Good luck Shirl!
Sending hugs and positive thoughts your way :love:

[Manxman]

Very best wishes BMW.

[Forest]

Good luck BMW.

Your attitude towards the situation is impressive and inspiring.

[Nasty]

Hey Shirl .. what a story huh .... I know its tough ... we have been there - partly ... when I was dxed with MS they showed me the MRI and I had a number of lesions (brain and spinal colum) so there was no doubt ...

1 gram steriod for three days .. so it seems they have uped treatment to 5 days ... things to realise of sterios .. they are the things of extremes. you can get extremely tired or awake (for me awake) . .extremely hungry or not at all (HUNGRY!) ... extremely happy or grumpy (both) ... everything is extremes ... as long as you know that you will realise that you will cope and come though ...

If there is anything I can do .. call me ... or the Grub ... its hard not to have a final diagnosis but I also revelled in knowing I had a brain cos I could see it ... Keep your attitude up ... you will be fine .... :)

[Storm]

Sorry to hear that mate, hope you are on the mend smartly.

[bungbung]

Best wishes BMW.

Ola

[Disco Dan]

Good luck girly, if it does turn out to be a $2 coin do you get to keep it?

[MSTRS]

Jeez girl, do you never have a boring life? :hug: All the best and keep that positive attitude. :2thumbsup

[James Deuce]

Jeepers Shirl, no half measures for you! Thinking of you.

[Xaria]

Best wishes. Hope it all goes well:grouphug:

[Okey Dokey]

Best wishes for getting it sorted and a speedy recovery.

[Leong]

Headaches are the worst - you can't distance yourself from them. I hope all goes well for you with the steroids and best results next month!! I have a very sore little toe (which isn't even broken) from my self inflicted 200+kph crash at Taupo on Friday - your post really puts things into perspective for me. Best of luck Shirley!!

[Bloody Mad Woman (BMW)]

Thank you all for your support and good wishes - geeze i spend more time correcting my typos!! Reality set in yesterday, went out to do normal saturday things and after an hour I was stuffed, the kangohammer hasn't stopped to date. I am semi paralysed down left side. Thank god I can still make a cup of coffee.

Started steriods yesterday - tonite the kangohammer in the head is relatively still. Bliss.

Colapop and Liz visited - we joked about the retard look. lol I tried to give him the strait finger with left hand b ut it was pretty pitiful and c rooked, it straightened wityh help from rright hand - lost its effect tho lol.

Unfortunately I do want to eat all the time, but drink lots of water instead - thirsty anyway.

I've cried once - out of sheer tiredness and frustration. I am so god damned independent, have had to be but that's beside the point. I got impatient cos I got tired yesterday and cdn't walk. No. 1 lesson - slow down.

Thank god for a 12 step program that I havd been in for 12.5 yrs. I have learnt to appre ciate the small things in life, lead a simplistic life, and am grateful for what do have and I live in the day. I do not think about the future or imagine the worse or go into scenarios - wasted emotion. I don't know what is going tyo happen and anyway 99% of your fears are never reealised. I'm not a saint, howevgr I sure as hell don't sweat the small stuff.

I know I will have my down times - but they will pass.

Keep the jokes coming. Laughter is tyhe best medic ine a nd I'm the first to make fun of my retarded movements - Colapop didn't hold back lol.

Cheers Shirley:wari: if only i was that co-ordinated.

[Curious_AJ]

you're awesome. we all love you and you'll be right in no time! *hugs!*

[FJRider]

You probably are doing BETTER, than so called "able bodied" KB'rs. Steroids make ya put on weight, so some retail therapy may be necessary in the near future. As has been said in previous posts...KEEP US POSTED.

ps. Dont worry about the typo's. It is obvious you have learned to type, some on site HAVE NOT.

[<G>]

Adding my best wishes for a positive outcome and speedy recovery.

[merv]

Sorry to hear about this Shirl. Hope they can fix you real soon.

Probably run into you toing and froing to the hospital because starting Wednesday I'm taking my Bro' from the Bay in there for assessment, and hopefully treatment, for cancer as he's been referred down here from Hastings hospital.

[onearmedbandit]

Thoughts with you BMW.

[GIXser]

As much as we have had our run ins, i dont wish that shit on anyone...
get better.. so we can have plenty more bickering arguements aye....
:)

[GIXser]

Good luck and be strong; mines 12cm's, albeit in my chest and not my black hole
:sunny:

its official...Boomer has a brain... its in his chest, and its 12 cm.....:yes: ohh and its shrinking ...it should dissapear alltogether in a few months:)

[Colapop]

Run Forrest, run!! (private joke)

[SpeedyGirl]

Run Forrest, run!! (private joke)

Oh God Stop that!!! You are just nasty! :rofl:

Shirey, thoughts are with you babe, great to catch up yesterday! You take care and let the boy know if you need anything, he's all yours....and gives great hugs!

[NZsarge]

Best wishes to you BMW.

[vifferman]

Best wishes to you, BMW. I hope everything goes well for you.
It's good that you've got lotsa brains - I had a scan a few years back, and they said, "We didn't find anything".
Not a brain, clockwork motor, or even a hamster wheel. :blink:

[Aslan]

Hi Shirley - very sorry to learn of your situation from Merv this evening.

I've read this thread and your posts in particular - you're one gutsy lady. I especially liked the philosophy you've drawn from the 12 step program - the Serenity Prayer i think.

You're in my thoughts - wishing you the best Shirley - best wishes Stephen O aka Aslan :doctor:

[Bloody Mad Woman (BMW)]

Got my appointment for another scan on 12 June which is quicker than expected so will know more then and what can be done.

One thing this has done is made my family contact me. My father who has not spoken to me for years emailed me. Ok blaming me for the non-contact which I had to laugh at but ignored. He would like to visit when I am in Nelson this weekend so I have advised some convenient times. And warned him I look a bit retarded - he's not into that. Keep an open mind.

Steriods knocking me about big time but the big bonus - no depression. I am still positive which I'm grateful for. Going to see my GP this morning and have to face my financial situation etc - at least I have taken some action around that yesterday - haven't been able to face it b4. Hopeing to get this on ACC as a result of my bike accident 2 years ago. Otherwise they might put me in the home with my mum for the permanently confused. lol

Life is good despite the wee glitch. lol

[Str8 Jacket]

Got my appointment for another scan on 12 June which is quicker than expected so will know more then and what can be done.

One thing this has done is made my family contact me. My father who has not spoken to me for years emailed me. Ok blaming me for the non-contact which I had to laugh at but ignored. He would like to visit when I am in Nelson this weekend so I have advised some convenient times. And warned him I look a bit retarded - he's not into that. Keep an open mind.

Steriods knocking me about big time but the big bonus - no depression. I am still positive which I'm grateful for. Going to see my GP this morning and have to face my financial situation etc - at least I have taken some action around that yesterday - haven't been able to face it b4. Hopeing to get this on ACC as a result of my bike accident 2 years ago. Otherwise they might put me in the home with my mum for the permanently confused. lol

Life is good despite the wee glitch. lol

Good onya girl! Keep up the positive attitude cause things might get harder and you're gonna need it to get you through! Also, dont forget to ask for help if you need it, there is no shame in that! Good luck and I hope you get through this, I know how scared you must really feel, deep down! :hug:

[Swoop]

Keep positive chick!

Thoughts are with you. (Why don't we have a Colapop-hug emoticon??)

[MSTRS]

... Otherwise they might put me in the home with my mum for the permanently confused

...

Perfect! All-weather bike riding (nice wide corridors) :eek5:

[Colapop]

Keep the jokes coming. Laughter is the best medicine and I'm the first to make fun of my retarded movements - Colapop didn't hold back lol.

Cheers Shirley:wari: if only i was that co-ordinated.
Hey Forrest!! It's like this... :motu:

And just anyone thinks I'm being a c*nt, me and the Retard get along just fine. Always here for you chick. (I'll let ya know what the Bandit can really do :devil2:

[Bloody Mad Woman (BMW)]

Hey Forrest!! It's like this... :motu:

And just anyone thinks I'm being a c*nt, me and the Retard get along just fine. Always here for you chick. (I'll let ya know what the Bandit can really do :devil2:


Bastard LOL

I hope you didn't look up as you rode away - cos I stood at the window, heard my bike and bawled my eyes out. Didn't expect that reaction. I WILL RIDE AGAIN. And you only got my bike on LOAN buddy. I will get childish and say it is MY BIKE. Quite a few have said to me = hey when ya kark it I want ya bike. LOL Rest assured if the bank don't get it - my brother does.
I can laugh and joke about my deformities - least I aint dribbbling out of the side of my mouth - YET. Eating in a restaurant is getting interesting - cos I eat cack handed - knife in left hand - so the knife has gone flying once or twice - haven't caught anyone yet.

Went and saw work today - they are absolutely amazing and will pay me until June. Big relief.

I really have felt truly blessed and humbled today. Has been a hard day but so many positives really. thank you all for your suport and good wishes. I truly value them.

Cheers Shirley

[Edbear]

Keep positive chick!

Thoughts are with you. (Why don't we have a Colapop-hug emoticon??)

You just use the "Group Hug" one for Colapop...:grouphug:

Keep positive BMW, we're all for you...:sunny:

[Colapop]

...bawled my eyes out...
HTFU will ya? Jesus, you've got something extra in there not something missing... well, the marbles that are missing have been gone awhile!!


Just spoke to Forrest. She's off to the rellies for a couple of days. They're in Nelson so I reckon she might have some 'herbal therapy' while she's there... unlikely to help tho'... :doobey:

(BTW the Bandit goes faaaasssstttt!!!)

[Bloody Mad Woman (BMW)]

I HTFU now. I am not going to tell you what the Bandit can do - however do feel free to clean it LOL Nanny Nap time.

[Jacko2]

Got my appointment for another scan on 12 June which is quicker than expected so will know more then and what can be done.

One thing this has done is made my family contact me. My father who has not spoken to me for years emailed me. Ok blaming me for the non-contact which I had to laugh at but ignored. He would like to visit when I am in Nelson this weekend so I have advised some convenient times. And warned him I look a bit retarded - he's not into that. Keep an open mind.

Steriods knocking me about big time but the big bonus - no depression. I am still positive which I'm grateful for. Going to see my GP this morning and have to face my financial situation etc - at least I have taken some action around that yesterday - haven't been able to face it b4. Hopeing to get this on ACC as a result of my bike accident 2 years ago. Otherwise they might put me in the home with my mum for the permanently confused. lol

Life is good despite the wee glitch. lol

How you doin' girl?
(Lotsa people would like to know)
Thoughts with ya on the 12th
JACKO

[Cache Wraith]

All the best with the scan on the 12th. Thinking of you. Stay positive. Nothing is by co-incidence. There is some good in this for you somewhere. All the very best.

[Bloody Mad Woman (BMW)]

Interesting times. Was in Nelson for 2 weeks - lovely weather lol. Stayed on a farm in Mapua that overlooks the sea - very tranquil. I slept alot and still do.
My father and I hadn't spoken for 2 years - he came to gawk at the geek.
His next words after Hello were "Oh you are a cripple aren't you". I wont go into details, suffice to say he's a bigger cunt than what I thought - and I hate the C word.

I loved seeing my Mum who in in her own happy lala land. No point telling her.

My girlfriend took me out a couple of times - I was in a wheelchair - she loved the fact that for once she was taller than me lol.

I had a friend of 17 years stay with me on Sat nite - not once did he ask how I was or what I was going thru but went on about 3 pimples on his knee - he does't know why he's got them. Fk if that's all he's got to worry about in life he's bloody lucky. Another friend of 7 years (platonic) spat the dummy, so much for I'll be here for you, he wants to be the only one to help me , but he's so full of shit, and not come thru on his promises to help. I had warned him at the beginning I didn't need stress or his drama queen antics.

The last 3 days have been hell = the headaches are phenomenal - God I pity anyone that suffers from migraines. I started to get quite down = however a girlfriend visited today and took me out -= exactly what I needed.

Thurs can't come quik enuf = have another mri and then hopefully I will know where to from there. I'm positive about it and just want to move forward.

Thanks for all of your support and kind words. They are appreciated.

Cheers Shirley

[Mrs Busa Pete]

Will be thinking of you on thursday. What time is your mri :grouphug:

Wendy

[Bloody Mad Woman (BMW)]

`10aM is appt - I will probably be there all day hope I get results same day

[Mrs Busa Pete]

Good luck.........

[Bloody Mad Woman (BMW)]

I'm the eternal bloody optimist - you would think I would have learnt by now. I don't believe in thinking negatively and I keep my past experiences in the past, but christ I should have known things would not go smoothly.

I got the mail today and there's a letter from the hospital - my mri is on 2 October 2008. I have an appt tomorrow - where I was told I would be having another mri tomorrow and see if the tumour had shrunk or grown. I ring the halfwits to find out what is happening - no I don't have an mri tomorrow - it is just a followup appt from your last one. HELLO so how the fk are they going to see or know whether tumour has changed.

I had better duct tape my mouth up tomorrow and just let my friend who is a nurse speak. Maybe my hands as well - I'm not suicidal but hell I could easily be homicidal lol.

Jesus its not like I can work at all. At first I thought I imagined they said brain tumour but crikey they put it in writing as well so it wasn't my imagination and I did see it very clearly on the scan.

Gonna get my butt to a meeting - I can vent there without being judged or interrupted and get it off my chest hehe poor bastards. Thank god for a 12 step program.

Oh well one day at a time. Looks like jack shit will be revealed tomorrow.

[James Deuce]

Dear God Shirl.

I really had it up to "here" with the Doctoring fraternity. I'd be happy to sort some issues out for you once you've finished using the goobers to your own advantage.

Just take some names.

I'll do the rest.

[Mom]

I'm the eternal bloody optimist -

Dear God how have I missed this thread! Shirl what a shitty thing to be facing mate! Stay positive on the prognosis, but insist that you need scans and the like immediately. Do not allow the system to shaft you in anyway. Use your friends to help you. I wish we lived closer, I would be there in a flash, I dont take prisinors around this sort of thing at all!

All my prayers and encouraging thoughts are heading your way. Take the time to hear them.


Dear God Shirl.

I really had it up to "here" with the Doctoring fraternity. I'd be happy to sort some issues out for you once you've finished using the goobers to your own advantage.

Just take some names.

I'll do the rest.

I will help! This sort of pathetic response is not acceptable at all!

[Bloody Mad Woman (BMW)]

Thanks Jim and Mom.

I just had a call from the clinic reminding me about my appt, jesus the right hand doesn't know what the left hand is up to. Who's got the brain tumour I wonder!!

I asked again was I having an mri - We wouldn't necessarily have that information - you would have to ring radiology. FFS I would have to ring?? I don't think so sunshine. Oh well we will see what happens tomorrow. I'm calm now lol, well almost.

[riffer]

Damn Shirl what a muckaround. You're taking it a lot calmer than I would!

Best of luck tomorrow with holding back from throttling the intransigent bastards.

[Nasty]

Thanks Jim and Mom.

I just had a call from the clinic reminding me about my appt, jesus the right hand doesn't know what the left hand is up to. Who's got the brain tumour I wonder!!

I think it is great that they now call to check that you are comming in ... its helped me heaps since I have cardiology and neurology ... its great when there are changes in appointments ... they used to have a really high percentage of people not showing ... if employing someone to ring and remind people is the cost of having less no shows it is really worth it.

[Bloody Mad Woman (BMW)]

I think it is great that they now call to check that you are comming in ... its helped me heaps since I have cardiology and neurology ... its great when there are changes in appointments ... they used to have a really high percentage of people not showing ... if employing someone to ring and remind people is the cost of having less no shows it is really worth it.

My fingers weren't as fast as my mind - my comment about not knowing what right hand... etc was when I was asking her whether I was having an MRI and not even she knew! (she wasn't plain admin)

It is good they ring and remind you = as it was I rang them first to check where and what time cos I've put the letter in a safe place - and only god knows where that is - lol

[BarBender]

Only just caught up with this.
All the best with your appointment tomorrow Shirley.
Looking forward to having you ride up to the East Coast again.
You're due for a spin that way soon girl.

[Colapop]

You wanna help with the docs? I can hold 'em and you can berate 'em....

[yungatart]

Sheesh! The health system is in dire straits for sure. I'm sorry that you have to be the one to wear this.
Still sending positive thoughts your way. I often take questions written down to appts like this. Write down the answers you are given..don't apologise for doing so either! And don't leave until you have your answers.
Good luck!

[Bloody Mad Woman (BMW)]

I have my list as does my friend Jane, who is a nurse. Also taking my bike magazine and a book!! Maybe I should take a pillow too so I can have a nanny nap lol cos I didn't sleep at all last nite - look out if any bastard pisses me off - it will be superbitch within 0.1 seconds flat. I shall be very restrained - I will take the ducktape as a precaution lol.

Nah I'm going with the flow - very calm.

[Bloody Mad Woman (BMW)]

I didn't have an mri today - will be in a month's time. They have totally ruled out multiple sclerosis thank goodness - otherwise my riding days would be over!

It is definitely a brain tumour and they are hoping that it may just heal itself and go away in time - anything from 3-6 months - hard to say. The neuro specialist wants a little more time to lapse for the mri - to give it a chance to show changes. They do not want to operate or do a biopsy unless they absolutely have to as there is a high risk of permanent disability or side effects.

They checked me over thoroughly, felt like saying I'm not a bloody rag doll - even asked me to run - fk it's difficult to walk sometimes let alone run - but all I could hear in my head was bloody Colapop say Run Forrest Run. Damn near killed me. Had to walk the line i.e. one foot in front of the other - I had a quiet giggle to myself - cos in my drinking days we would do that and if we didn't fall over we could drink more lol. Jesus I couldn't do it today - ripped off ay!!

So basically I rest up, and hopefully the headaches will lessen. I am still numb down my left side. Won't be on medication - which is good - I can take panadol.

All in all I think it is very positive and my support person/friend Jane agrees.

I did not sleep last nite and am totally exhausted - came home after appt and slept. I feel quite relieved.

So I'm off to bed now

[Nasty]

I didn't have an mri today - will be in a month's time. They have totally ruled out multiple sclerosis thank goodness - otherwise my riding days would be over!


Great news to have a final diagonosis Shirley ... although I need to dispel a partial myth about not being able to ride with MS.

That is from that point of view although I got my licence 3 years ago and have had multiple sclerosis for 11 years (that is from diagnosis not from when symptoms started which at least was three years prior to that), I can't see how it ended my riding days .... I am not saying that it doesn't for some but that is similar to saying I have MS and now will end up in a wheelchair (3% of those with MS, which is approx 1% of the total NZ population do end in a wheelchair but 97% don't).

[Conquiztador]

If there really is a god then someone needs to tell him to get his shit sorted! If he had a tumour left over that needed a home, whats wrong with Mugabe??

Girl, you be fine, you will get through this like all the other sheit. I have plans of catching up with you in the future so you can show off those riding skills.

Never give up, never surrender.

[smoky]

Great news to have a final diagonosis Shirley ... although I need to dispel a partial myth about not being able to ride with MS.

That is from that point of view although I got my licence 3 years ago and have had multiple sclerosis for 11 years (that is from diagnosis not from when symptoms started which at least was three years prior to that), I can't see how it ended my riding days .... I am not saying that it doesn't for some but that is similar to saying I have MS and now will end up in a wheelchair (3% of those with MS, which is approx 1% of the total NZ population do end in a wheelchair but 97% don't).

I was diagnosed 4 and a half years ago, Doc told me that there is a 50% chance I may at some stage end up in a wheel chair. Apart from some problems here and there - I'm still riding, and will keep riding as long as I enjoy it.

[Jiminy]

Good to hear that you don't have to wait until October for the MRI and that there is a good reason for not doing it now.

Can't help much, but here is a hug for you :hug:. I'm impressed by your positive attitude, keep the spirit!

[flame]

Great news to have a final diagonosis Shirley ... although I need to dispel a partial myth about not being able to ride with MS.

That is from that point of view although I got my licence 3 years ago and have had multiple sclerosis for 11 years (that is from diagnosis not from when symptoms started which at least was three years prior to that), I can't see how it ended my riding days .... I am not saying that it doesn't for some but that is similar to saying I have MS and now will end up in a wheelchair (3% of those with MS, which is approx 1% of the total NZ population do end in a wheelchair but 97% don't).

hey K, I didn't know you had MS, sure makes you a positive person eh. I have a very similar condition which fell on my lap 8 years ago, MG (Myasthenia Gravis), an auto immune condition affecting muscles and eating up the receptors that make them work (or not work lol). They say too that I could end up in a wheel chair or back on an ugly respirator at some stage if the drugs stop doing there thing. However thats NOT going to happen. Thank goodness for meds that keep it under control, and for ongoing scientific reseach that is going to find us a one off cure soon eh:niceone:

Keep thinking positive thoughts Shirley, when the pro's tell you what you can and cant do, they aint always right. Keep the fight in you and don't EVER give up. Your going to be fine and you WILL beat this thing:hug: