Herceptin Riders Peaceful Protest Ride

**maxworldbiker** · 24th January 2008, 16:36

Originally Posted by forkoil

Isnt the ride about soooo getting funding for herceptin. How specifically is it aiming to get total cancer funding increased?

This is the last time I'm going to reply to you, as I suspect like all the other times me and other people on this thread have tried, its a waste of time, because you "SOOOOOO" don't seem to want to hear what's actually being said about the process. All you seem to want to do is keep coming back, like an annoying fly, to have another go, and yet another go, and another, at criticizing people from trying to do SOMETHING helpful in whatever way they feel they can. Besides complaining, what are YOU doing?

We've all got the message well and truly now that you don't agree with what this ride aims to achieve, so its hard to know what else you expect at this point. You've more than made your point here. Maybe its time to take your fight somewhere else.

**forkoil** · 24th January 2008, 17:37

Originally Posted by maxworldbiker

This is the last time I'm going to reply to you, as I suspect like all the other times me and other people on this thread have tried, its a waste of time, because you "SOOOOOO" don't seem to want to hear what's actually being said about the process. All you seem to want to do is keep coming back, like an annoying fly, to have another go, and yet another go, and another, at criticizing people from trying to do SOMETHING helpful in whatever way they feel they can. Besides complaining, what are YOU doing?

We've all got the message well and truly now that you don't agree with what this ride aims to achieve, so its hard to know what else you expect at this point. You've more than made your point here. Maybe its time to take your fight somewhere else.

You patronising cow. What I expect and what you say but fail to do is make it clear how you are not going to achieve the transfer of cancer drug money from other recipients to yours. You dont have a plan to do that do you. No its whats good for you and thats all that matters... and this is the last time I will bother talking to you.

**ynot slow** · 24th January 2008, 19:56

Originally Posted by forkoil

I agree with you. However this thread and my argument is against campaigns that promote or target one particular drug, because the purse string holders will tend to oil the squeekiest wheel and rob peter to pay paul, keeping the total drug budget the same. Thus less vocal groups get less of the cake (such as men). This is unfair. Drug campaigns should be to increase the total drug budget, rather than purely self interested.

Yep agree with you,can see you are not against giving the drugs to all those worthy,and agree how do you determine who gets what?
Me I have no problems with the system,I was dealt with pretty quick,but have heard of others waiting way to long.

**ynot slow** · 24th January 2008, 20:03

I was a little annoyed when I first saw this ride in October or so,my belief was why target this part of the cancer spectrum.As this ride gets momentum and publicity the organisers can add weight to all sides of cancer treatment and drug prevention ideas.

At the very least with publicity hopefully generated by this event people will get vocal for treatment for all illness's,just look at the sunsmart system in schools undertaken by the local cancer society nationwide.

**maxworldbiker** · 25th January 2008, 13:38

Originally Posted by ynot slow

I was a little annoyed when I first saw this ride in October or so,my belief was why target this part of the cancer spectrum.As this ride gets momentum and publicity the organisers can add weight to all sides of cancer treatment and drug prevention ideas.

At the very least with publicity hopefully generated by this event people will get vocal for treatment for all illness's,just look at the sunsmart system in schools undertaken by the local cancer society nationwide.

Yep, that's the over-arching aim. To get Herceptin funded, well that's a start. I'm just a small jo-public person, really, so I can't for one second imagine I could ever change the whole face of NZ's cancer funding structure by myself. That would be an impossibly tall order for anyone! I don't have a master plan. What might happen tho, hopefully is for people to see that it worked (if it does - Gosh, I hope it does!!!) and start campaiging too, for funding for cancer drugs that are personal to THEM, for whatever reasons.

Think domino effect... Once a governing entitiy has capitulated on one brick in the wall, it could be just that bit harder for them to justify on-going refusal to fund others that are equally important, and bingo, THERE'S the chink in the armour. My personal experiences with cancer convince me totally that no one type is more deserving of attention than another, but we have to start somewhere and there's more chance of making a positive impression if you're passionate about your cause, and I'm passionate about Herceptin, so I'm going for it.

Just had a very nice email from a breast cancer support group area co-ordinator in the North Island, inviting the Herceptin Riders to a bit of a welcome party en route thru that area. Another sponsored place on offer too, for anyone who wants to take it up. Tons of positives coming thru

. Keep watching!

**GazzaRuney** · 29th January 2008, 06:02

Damn - that blue writing is hard to read !!!!!!!!!

**maxworldbiker** · 29th January 2008, 13:28

Congratulations to the lovely Miss Nasty, who has bagged the Bike Rider Magazine sponsorship! She gets her ride fully paid for by the magazine, and will no double become temporarily famous as a result, as Raconteur for BRM's Herceptin Ride review article.
Who knows where it might lead for ya, Nasty... (I can't keep calling you that...)

Don't forget to pack ya party frock... or at the very least, ya party pants!

**Nasty** · 29th January 2008, 17:21

Originally Posted by maxworldbiker

Congratulations to the lovely Miss Nasty, who has bagged the Bike Rider Magazine sponsorship! She gets her ride fully paid for by the magazine, and will no double become temporarily famous as a result, as Raconteur for BRM's Herceptin Ride review article.
Who knows where it might lead for ya, Nasty... (I can't keep calling you that...)

Don't forget to pack ya party frock... or at the very least, ya party pants!

I am thrilled to have the backing of BRM for this ride. I am really excited about getting out there and getting some good messages out to the public. At the very least I have some party pants put aside .. I think I will be wearing them under the leathers though

**maxworldbiker** · 29th January 2008, 19:23

Originally Posted by Nasty

I am thrilled to have the backing of BRM for this ride. I am really excited about getting out there and getting some good messages out to the public. At the very least I have some party pants put aside .. I think I will be wearing them under the leathers though

Well, I hope they're sparkly-spangly, young lady! A Friday night in Auckland and a Saturday night in Tauranga???

You just might need them! Hmmm... mental note to self... stock some alka seltza in the back-up truck. !

**maxworldbiker** · 4th March 2008, 17:09

Herceptin Riders welcome Jen to the HR team. Many of you KB'ers out there already know this lass, who is based in Nelson. Jen has stepped into the breach at the TOTAL last minute (as in just a few short hours ago!) to fill the shoes of Alex, our rider from the USA who has unfortunately had a last minute change of work schedule and now can't get out here to NZ in time to do this thing with us all. Jen has had a lot of help today to move the mountains that stood in the way of her coming with us. Alex will be very chuffed that his place hasn't been wasted, and we're glad Jen's been able to pull it all together at such short notice. The fact that she has is extraordinary. We take our hats off to her for the achievement, and it will be just great to have her with us.

**MyGSXF:Me** · 4th March 2008, 20:49

Originally Posted by maxworldbiker

Herceptin Riders welcome Jen to the HR team.

Thanks Max..

I still can't believe all that has happened today.. & that I am leaving in a few hours, to go on this trip!!

The support & generosity of the people involved today, has been truly overwhelming!!

It has restored my lost faith in human beings!!

I will do my best to fill Alex's shoes..

Jen

**maxworldbiker** · 5th March 2008, 06:22

Well, she's right about that, folks! The generosity of the people out there has been indescribable. People have literally THROWN resources at this whole event, in so very many forms its hard to believe, and I've been reduced to tears myself on more than one occasion by it, and by the message that so clearly underpins it: So many people want this stupid Herceptin decision reversed. I know we're doing the right thing with this protest, whichever way it goes.

There are people out there, of course, who could have easily helped or supported us in any number of small, painless and practical ways, but who instead chose not to offer or respond to requests for assistance, but thankfully they have been very, very few.

Jen is absolutely right in saying that the generosity of so many people really does restore some faith in human nature - albeit with labour's (do they deserve a capital letter? hmmm...) Polly Tishins noticably absent from the list!

So its onwards from tomorrow.

Rupert is packed and ready to go, but Bourbon has gone AWOL, so my mission for this morning, before I hit the road myself for Wellington, is to find the little bugger before Rupes ends up in a screamig teddybear heap, has a tantrum, and refuses to get on the bike!

If you see us on the road, people, give us a toot!

**Nasty** · 7th March 2008, 07:48

Day one .... wahoo .... 14 bikes turned up at Te Papa ... some were registered riders and some were supporters .... it was a great start ....

off to Palmerston North ... up state one ... getting used to each other and how we ride .... Had lunch with the ladies from the Cancer Group there ... wonderful ladies ... then off to Hawera for afternoon tea .. thanks Shaz ... wonderful cafe you work at .. and our support drive loved the apple crumble!!!!

From there it was off to New phymouth ... well we arrived here and were met by Nadroj ... who organised a place for dinner (stumble inn) ... and some of us went and met with inline4!!

Stayed at the Saddle and Sulky (great sleep) ... woke and am now preparing for the next phase ... off to Waitomo for Lunch then Huntly for afternoon tea ... before heading to Auckland for the night (staying in remuera) ...

Signing off for now - Nasty!!

**sunhuntin** · 7th March 2008, 10:12

Originally Posted by Nasty

Day one .... wahoo .... 14 bikes turned up at Te Papa ... some were registered riders and some were supporters .... it was a great start ....

off to Palmerston North ... up state one ... getting used to each other and how we ride .... Had lunch with the ladies from the Cancer Group there ... wonderful ladies ... then off to Hawera for afternoon tea .. thanks Shaz ... wonderful cafe you work at .. and our support drive loved the apple crumble!!!!

From there it was off to New phymouth ... well we arrived here and were met by Nadroj ... who organised a place for dinner (stumble inn) ... and some of us went and met with inline4!!

Stayed at the Saddle and Sulky (great sleep) ... woke and am now preparing for the next phase ... off to Waitomo for Lunch then Huntly for afternoon tea ... before heading to Auckland for the night (staying in remuera) ...

Signing off for now - Nasty!!

i had a very very welcome friend turn up at work last night... mr grub! more than gave me a shock, was great to see him.

i finished work early, and then took grub back to my girlfriends place. she got all kitted up and we rode with him to bulls for tea. if we didnt have to work today, we would have ridden all the way to welly with him.

susan and i will be down in may at some stage [im thinking weekend of the 24th] so will call to see you two.