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Thread: Motor Neurone Disease

  1. #16
    Join Date
    27th September 2003 - 12:00
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    Quote Originally Posted by Bikern1mpho View Post
    Hopefully if we can get him the right physion support etc this might help to stave off some of the feelings of helplessness etc.
    Right mental support is really important too. Don't "Mother" him too much. Remind him that his mind is an asset. His life experience is irreplaceable knowledge. Jill used ta call herself In-valid (her play on invalid). Had ta remind her how important she was to those around her. If she didn't fight her ex to ensure her two kids had they share of the farm, they wouldn't have had the backing in life that they have had. She also put a lot of time helping the MNS soc. get started. She owned and run 11 Commercial Rentals. Most of this was done via the special PC she had set-up for her. She also made sure ta get out and about. She was a key person in her area. Definitely not in-valid.
    New Zealand......
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  2. #17
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    14th January 2008 - 14:44
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    The only knowledge I had of this disease is that one of my most admired individuals has it - Steven Hawking. He has lived WELL past his prognosis, and has achieved immeasurable accomplishments for science.

  3. #18
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    29th December 2007 - 18:54
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    Mothering

    Believe me with the amount of tragedy that our family has gone through we are not the mothering or pandering type of family. We are very grounded and are more practical than most regarding illnesses. That is not to say that we don't care we just have a very pragmatic approach. Luckily we are a very close family and we will always be there for each other.

    I will pass on this information to my uncle, aunt and cousins as I am sure they would really like to hear about such a positive person and what she has achieved. It sounds as if she really has had a positive influence on you and that you have a great deal of respect for her.

    Thanks again for this I really do appreciate you taking the time to tell me more about this lady and how she dealt eith her illness.


    Quote Originally Posted by RiderInBlack View Post
    Right mental support is really important too. Don't "Mother" him too much. Remind him that his mind is an asset. His life experience is irreplaceable knowledge. Jill used ta call herself In-valid (her play on invalid). How ta remind her how important she was to those around her. If she didn't fight her ex to ensure her two kids had they share of the farm, they wouldn't have had the backing in life that they have had. She also put a lot of time helping the MNS soc. get started. She owned and run 11 Commercial Rentals. Most of this was done via the special PC she had set-up for her. She also made sure ta get out and about. She was a key person in her area. Definitely not in-valid.
    We're just two lost souls swimming in a fish bowl, year after year,
    Running over the same old ground.
    What have you found? The same old fears.
    Wish you were here. QWQ

  4. #19
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    29th December 2007 - 18:54
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    Diacritic

    Can who ever sent the red rep re: I too have this tragedy how we deal with it is diacritic please PM me as I have no idea what you are on about.
    We're just two lost souls swimming in a fish bowl, year after year,
    Running over the same old ground.
    What have you found? The same old fears.
    Wish you were here. QWQ

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