I have brains - I've seen them (another hospital thread)

[BarBender]

Only just caught up with this.
All the best with your appointment tomorrow Shirley.
Looking forward to having you ride up to the East Coast again.
You're due for a spin that way soon girl.

[Colapop]

You wanna help with the docs? I can hold 'em and you can berate 'em....

[yungatart]

Sheesh! The health system is in dire straits for sure. I'm sorry that you have to be the one to wear this.
Still sending positive thoughts your way. I often take questions written down to appts like this. Write down the answers you are given..don't apologise for doing so either! And don't leave until you have your answers.
Good luck!

[Bloody Mad Woman (BMW)]

I have my list as does my friend Jane, who is a nurse. Also taking my bike magazine and a book!! Maybe I should take a pillow too so I can have a nanny nap lol cos I didn't sleep at all last nite - look out if any bastard pisses me off - it will be superbitch within 0.1 seconds flat. I shall be very restrained - I will take the ducktape as a precaution lol.

Nah I'm going with the flow - very calm.

[Bloody Mad Woman (BMW)]

I didn't have an mri today - will be in a month's time. They have totally ruled out multiple sclerosis thank goodness - otherwise my riding days would be over!

It is definitely a brain tumour and they are hoping that it may just heal itself and go away in time - anything from 3-6 months - hard to say. The neuro specialist wants a little more time to lapse for the mri - to give it a chance to show changes. They do not want to operate or do a biopsy unless they absolutely have to as there is a high risk of permanent disability or side effects.

They checked me over thoroughly, felt like saying I'm not a bloody rag doll - even asked me to run - fk it's difficult to walk sometimes let alone run - but all I could hear in my head was bloody Colapop say Run Forrest Run. Damn near killed me. Had to walk the line i.e. one foot in front of the other - I had a quiet giggle to myself - cos in my drinking days we would do that and if we didn't fall over we could drink more lol. Jesus I couldn't do it today - ripped off ay!!

So basically I rest up, and hopefully the headaches will lessen. I am still numb down my left side. Won't be on medication - which is good - I can take panadol.

All in all I think it is very positive and my support person/friend Jane agrees.

I did not sleep last nite and am totally exhausted - came home after appt and slept. I feel quite relieved.

So I'm off to bed now

[Nasty]

I didn't have an mri today - will be in a month's time. They have totally ruled out multiple sclerosis thank goodness - otherwise my riding days would be over!

Great news to have a final diagonosis Shirley ... although I need to dispel a partial myth about not being able to ride with MS.

That is from that point of view although I got my licence 3 years ago and have had multiple sclerosis for 11 years (that is from diagnosis not from when symptoms started which at least was three years prior to that), I can't see how it ended my riding days .... I am not saying that it doesn't for some but that is similar to saying I have MS and now will end up in a wheelchair (3% of those with MS, which is approx 1% of the total NZ population do end in a wheelchair but 97% don't).

[Conquiztador]

If there really is a god then someone needs to tell him to get his shit sorted! If he had a tumour left over that needed a home, whats wrong with Mugabe??

Girl, you be fine, you will get through this like all the other sheit. I have plans of catching up with you in the future so you can show off those riding skills.

Never give up, never surrender.

[smoky]

Great news to have a final diagonosis Shirley ... although I need to dispel a partial myth about not being able to ride with MS.

That is from that point of view although I got my licence 3 years ago and have had multiple sclerosis for 11 years (that is from diagnosis not from when symptoms started which at least was three years prior to that), I can't see how it ended my riding days .... I am not saying that it doesn't for some but that is similar to saying I have MS and now will end up in a wheelchair (3% of those with MS, which is approx 1% of the total NZ population do end in a wheelchair but 97% don't).

I was diagnosed 4 and a half years ago, Doc told me that there is a 50% chance I may at some stage end up in a wheel chair. Apart from some problems here and there - I'm still riding, and will keep riding as long as I enjoy it.

[Jiminy]

Good to hear that you don't have to wait until October for the MRI and that there is a good reason for not doing it now.

Can't help much, but here is a hug for you . I'm impressed by your positive attitude, keep the spirit!

[flame]

Great news to have a final diagonosis Shirley ... although I need to dispel a partial myth about not being able to ride with MS.

That is from that point of view although I got my licence 3 years ago and have had multiple sclerosis for 11 years (that is from diagnosis not from when symptoms started which at least was three years prior to that), I can't see how it ended my riding days .... I am not saying that it doesn't for some but that is similar to saying I have MS and now will end up in a wheelchair (3% of those with MS, which is approx 1% of the total NZ population do end in a wheelchair but 97% don't).

hey K, I didn't know you had MS, sure makes you a positive person eh. I have a very similar condition which fell on my lap 8 years ago, MG (Myasthenia Gravis), an auto immune condition affecting muscles and eating up the receptors that make them work (or not work lol). They say too that I could end up in a wheel chair or back on an ugly respirator at some stage if the drugs stop doing there thing. However thats NOT going to happen. Thank goodness for meds that keep it under control, and for ongoing scientific reseach that is going to find us a one off cure soon eh

Keep thinking positive thoughts Shirley, when the pro's tell you what you can and cant do, they aint always right. Keep the fight in you and don't EVER give up. Your going to be fine and you WILL beat this thing