Hi Guys
I have had a few supportive messages from Kiwi Bikers. That’s actually really kind and appreciated.
I guess on reflection I came across kinda whiney but that was not my intention. I was more trying to explain that very often situations arise where there are no easy answers from the medical system. These are your no casserole conditions. What I mean by that is, break your arm or leg in a motorcycle accident and your mates turn up and bring over a meal or something and commiserate and have a laugh. Get dementia or prostate cancer and everyone gets a bit awkward and you literally never see some people again. I get that – it’s a bit confronting.
Worst of all you never hear from the DHB either. In most cases – ‘oh you are too younger and active’ and that includes charities. Go back to breaking a leg – oh we have ACC paying for everything including a taxi to work etc etc. In our case – well we did participate in a global DNA markers experiment (at our cost) but we even had to ask for the 2 year follow up from the neurology dept.
IMHO – if you provide no support or care you also default on your right to deign someone a dignified ending.
Our recent experience has lead me to a totally different view of the world and my relationship with the DHB as well as changing my personal values.
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