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View Full Version : AAARRGGHHH! Bugger it....



Paul in NZ
4th June 2010, 16:39
Look – lifes not fair and I’m the first to realise that in the greater scheme of things I’m greatly blessed. If you doubt that you would be horribly wrong and easily convinced via a quick trip to a cancer ward or a hospice where you will meet some genuinely heroic folks.

So in general my life is bloody fantastic! But every now and then we all get a bit of a slap in the gob and seethe away a bit and think – this totally SUCKS! Its just venting and natural, no biggie and being a generally cheerful sort I know I’ll build a bridge and get over it. Eventually (well OK by later on tonight)

BUT!

Right now I’m a bit miffed at life. Sort of, ‘OK you bastard, you’ve had your fun now enough all ready!’

Most of you know I’m a type 1 diabetic – I look after myself pretty well and its not too bad really as I tend to being a bit on the anally retentive side. What some of you know is I lost most of a testicle to cancer a while back which was fine – got it earlier than early, 100% removed no chance of coming back, great recovery until a secondary infection in the wound put me into an ambulance and made me a very sick unit….

Still – not to worry eh! I’m OK (ish) now… Do some research and discover a lot of links between red meat and excess dairy products and my cancer thing… sweet as, knock off the red meat – oh hell, ditch the bloody chicken too… Thus I was rather surprised to fall down in a large heap one day… Why? No one knew but I pestered the doctor and guess what low iron… Oh that’s cos you don’t eat red meat and you work too hard… Erm.. Vicki is a girlie and she eats what I eat and her iron levels are fine and after I finished my course of iron tablets I fell down again… You can imagine that for a motorcyclist – this is potentially rather hazardous! (no comment on this but suffice to say one incidence convinced me to give it up for a while)

OK – we move on and I inexplicably end up in an ambulance again…. I’m getting pretty used to it know so when I get home at 6am its an hours sleep and off to do a 10 hour shift ;-)

The Dr does not think this is amusing so we do more tests and I’m still marginal in iron despite sprinkling rusty nails on my weet bix so off to see the man who specialises in these things… He takes one look at me and my insurance and excuses himself to order a new BMW… Eventually we do some tests and he shoves a telescope down my gullet and up me poo hole and takes more samples than the lunar rover… (I think he just enjoys it really)

What do we have? Coeliac Disease… (Gluten intolerance)

Its another auto immune thing like type 1 diabetes and seems to be linked blah blah and apparently up to 30% of type 1 diabetics have both etc etc (given the literally 100’s of blood tests I’ve had and my history of irritable bowel etc you would of thought someone would have ticked that bloody box by now)

So – I can’t eat sweet or fatty things, I don’t eat red meat and now any thing with gluten (almost everything else) is forbidden… and yes – I’m feeling a tad put upon frankly!

So – do any of you have a good recipe for rocks and air – seems that’s about all there is left….

Mully
4th June 2010, 16:46
Buggar.

Sounds like a vegan diet is the go.

Then you can dress in black and write moody poetry on your blog to complete the Emo transformation.......

yachtie10
4th June 2010, 16:46
bad luck chinup and all that

just curious why cant you eat lean red meat now?

im sure there is a silver lining (just cant think what the fuck it is)

at least there are a lot more gluten free products available (dont know how many fit your other conditions)

have a great weekend

Paul in NZ
4th June 2010, 16:47
Buggar.

Sounds like a vegan diet is the go.

Then you can dress in black and write moody poetry on your blog to complete the Emo transformation.......

c ould I just dress in black and be johny cash?

Paul in NZ
4th June 2010, 16:49
bad luck chinup and all that

just curious why cant you eat lean red meat now?

im sure there is a silver lining (just cant think what the fuck it is)

at least there are a lot more gluten free products available (dont know how many fit your other conditions)

have a great weekend

The red meat was just a personal choice thing and I did learn a whole new way of cooking - certainly time to re evaluate...

hellokitty
4th June 2010, 17:06
I don't like red meat, and I have been quite anemic (sp?). I get iron injections in my bum. Not the best solution, but one that works well for me.
I have also done the celiac tests and though I have all the symptoms, I am not a celiac.
There are suitable foods out there, you need to look for a support group - they will give you so many ideas about cooking and where to shop for food.
Expensive and difficult, I know, but actually a much healthier way of eating - try to stick to unprocessed food like fruit, vege and meat. (not actually sure what you can and can't eat)
There are substitute ingredients that you can use for baking as well. there is heaps of stuff online for you to research.

Madness
4th June 2010, 17:10
Sheesh, that doesn't sound like fun at all. How about fish Paul?

slofox
4th June 2010, 17:13
I have gluten free beer if that's any help..?

Ixion
4th June 2010, 17:26
Well, there y' go . That's the essentials taken care of. (He's not joking y'know)

Winr is OK, too . And vodka (not whisky , though)

Gluten free is not too restrictive. You can have potatoes, rice, buckwheat, corn, millet , kumaras, chickpeas.

Just mainly got to watch out for where wheat or cornflour is used as an excipient. The Indian takeaway is your friend. Beer, chicken curry, rice , could do worse.

In Auckland you can get samosa things made from rice flour that are as good as a pie (well, almost).

And fish n chips is still good for you, so long as they don't batter the fish.

Oh, and Mrs Ixion says to tell you that you must watch your fat soluble vitamins (A & D & E) , and take supplements.,( She is up on all this stuff, because she suffers from a whole raft of autoimmune things. )

pzkpfw
4th June 2010, 17:51
A lot of Indian things are made with pea flour. Apparently that has no gluten so is a good substitute (though I can't say exactly where it works well).

I had a Boss who was gluten intolerant, and he liked visiting because we would have Indian snacks like dried peas - which he could eat.

Mully
4th June 2010, 18:05
c ould I just dress in black and be johny cash?

NO!! Emo or nothing.


I get iron injections in my bum..

An hour and no-one has commented on this yet?

Paul in NZ
4th June 2010, 18:17
I get iron injections in my bum. Not the best solution, but one that works well for me.

There are suitable foods out there, you need to look for a support group - they will give you so many ideas about cooking and where to shop for food.
.

The only iron injections in my bum I need are my bikes ;-) If it was just the iron I'd take tablets but other unspeakable things happen too...


Support group - gah! I cringe at the thought.. I take your point but most support groups I join need rather more support after I've left than before - but of course you are right...

First step is the dietician / nutriionist... Sigh.. they will give me a poxy diary thing the size of a bloody telephone book to write everything down, I will resist, there will be words... Oh well...

Sigh! Another bloody label I've collected - wonderful!

Paul in NZ
4th June 2010, 18:17
An hour and no-one has commented on this yet?

Happy now?

Mully
4th June 2010, 18:24
Happy now?

Not really - not really the KB response I was expecting, TBH.

Motu
4th June 2010, 18:45
Join the Vege/Vegan group if you want a more practical discussion.I have been vege for 30 years,and was vegan for about20 or more.I have never had a problem with iron,but recently found I had a B12 deficiency - about right as it takes up to 20 years for the body to deplete it's B12 reserves.I had a series of B12 shots,and have gone back to dairy - a blood test last week showed all my levels well above minimum levels and will do another blood test in 3 months.With proper diet there is no need to have any problems,and even a gluten free diet can be very tasty.One of the most hammered cook books we have is a gluten free one,and we aren't on a gluten free diet....the food is just so good and easy to make.

riffer
4th June 2010, 18:53
Ah well, these things do happen Paul. Give me a call anytime I can fill you in mate. Our son Tim was diagnosed with coeliac disease about 3 years ago now. Gini has the most AMAZING recipes for all sorts of gluten free and diabetic friendly stuff having one of each in the family. Get Vicki to talk to her - we have heaps of info. Also, the amount of food that's come out in the last three years is amazing. Get in touch with the Coeliac Society - they're really helpful.

There's a booklet called the Manufactured Food Database. It lists EVERYTHING sold in New Zealand by the major manufacturers that is gluten free. Talk to the CS about it or google to find out more.

A fellow from around these parts called Robert Anderson is at the forefront of fighting this AI disease, and from what we heard at the Gastroenterologists conference last year they're pretty close to some amazing breakthroughs. But yeah, it's a bit of a bitch finding out at your stage in life but hey, if the alternative is death it doesn't look too bad now does it?

You survived Type I diabetes, you'll knock this bastard off too mate. Call me any time.

Simon

ynot slow
4th June 2010, 20:33
Hope the camera up the jacksie was not the usual wide angle,they hurt much easier the tele lens.

Seriously have had first hand camera,feels very strange under sedation,you can hear the people talking vaguely,but no pain as such.
Can really understand your ideal of someones always worse off than me thinking.Go in any radiation waiting room folks,most of the jokes will be from the nurses and patients,you meet good people(most of them anyway)a few older folks bitching about a small mole on their arm,meanwhile others worse than yourself(in your mind)grin and bear it,met many women having to lose their hair through chemo,and guys with prostate probs complaining less than those with minor(well comparitively sp)radiation regemes.

Sounds cliche but keep positive dude.

shafty
4th June 2010, 21:07
Chin up Paul, feelin for ya.

- I was going to suggest the Coeliac Society also - as a resource, - I used to work for a med supply co who promoted gluten free prod's - before you know it, the various 'mods' will be built in to your life no probs;

Oh, and pussy is gluten free I believe - get in to some of that

Paul in NZ
4th June 2010, 21:19
Thanks chaps - lots of great info ;-)

Just shared a bottle of vino with Vicki, spent an hour working on a bike while she was cleaning up an old tool chest grooving to some sweet sounds in the shed and now my mojo is restored! (I then spent another hour repairing what I broke in the first hour) doh!

Pussy is gluten free eh? Might have to ask for a perscription ;-)

davebullet
4th June 2010, 21:40
c ould I just dress in black and be johny cash?

Hey - you just said you were gluten intolerant, now you like to wear black dresses? :laugh:

How about fish?

Paul in NZ
5th June 2010, 07:16
Hey - you just said you were gluten intolerant, now you like to wear black dresses? :laugh:

How about fish?

Nah - I dont wear fish either but I like catching them and eating them...

Nasty
5th June 2010, 07:57
So – I can’t eat sweet or fatty things, I don’t eat red meat and now any thing with gluten (almost everything else) is forbidden… and yes – I’m feeling a tad put upon frankly!

So – do any of you have a good recipe for rocks and air – seems that’s about all there is left….

Not for rocks and air .. but I have some awesome Macrobiotic cookbooks ... that is based on the whole food diet ... being vegan. You can have if you like.